Bedtime Prayers

This is audio of Matthew and Mommy doing their nightly routine. After reading a book, they then pray and prepare for a good nights sleep. We try to instill a grateful heart. This audo shows you of how our faith has carried us through in our journey. Angelman Syndrome alters a child’s voice and its ability to communicate — but Matthew is trying to defy this symptom.

There are so many days I feel so defeated by Angelman Syndrome and the many debilitating symptoms it bring to the families with the diagnosis. For those of you who have been in our corner, there are only few vulnerabilities we’ve shared and we can’t even begin to tell you how the day-in and day-out is for the entire family. Let me begin to tell you that inasmuch as it has been so hard for us, the little glimpses of hope that has been shined on to us by so many of you — Mama Mindy at the daycare who has continued to help since Matthew was 6 months old, the many medical professionals who’ve helped us paved our paths to finding the diagnosis and the many wisdom along the way when Matthew have medical issues, the many teachers and the many therapy professionals who’ve helped us how to maneuver early intervention, to my best friend Theresa who continues to be my resource, who fights and advocates for people with disabilities in the forefront of her job, and the many friends who have rallied with us, supported us with their presence in many of Matthew’s AS awareness efforts — words of gratitude isn’t enough to convey the deepest part of the hope we have cling on in this journey.

When we are on our knees asking God for a relief, we are always reminded of the passage in “1 Corinthians 10:13: God is faithful, who will not allow you to be tempted beyond what you are able”.

Raising Matthew has required more strength from us, more so than anything we have endured. When we don’t have enough strength, we call onto the Lord to replenished what we’ve lost — we don’t see God, but He always showed His faithfulness in the friendships we have formed with people, the wisdoms we have gained while reading, and the many circumstances that shaped and matured us. When we think of what is in the future, and when our bodies are tired, and our minds continue to wonder of our purpose, God has redirected our thoughts to focus on just the “today”. We think of Matthew … in perspective … we put our lives in the lenses of his journey — we feel the pain of the “what if”. What if Matthew never have us? How would his life be? We feel that often times, God uses our deepest pain as the launching pad of our greatest calling.

When I have my 1st born, he was my reason, and I am so thankful he has become the man I have prayed and hoped he would be. Now, I am embarking to a new calling — being Matthew’s voice, his biggest advocate and his all-around therapist — but more importantly, being a Mother!!!

I have never lost sight of my main purpose — some of the idealism and the reality of what motherhood brings to the core of my being. I am not perfect, but I strive to be the best Mother for my kids, shaping them from the harshness of the world, showing them to believe that life has a purpose, and that they have to believe and have faith that God has a purpose for their lives.