Our youngest son, Matthew, was born with a rare genetic disorder called “Angelman Syndrome.” Our family is always looking for ways to educate others on what Angelman Syndrome is as well as “special needs” in general.
This summer we wanted to do something different and try to raise awareness by traveling across the United States and meeting other families who have children with Angelman Syndrome. We just got a 19’ travel trailer that we will be using for the trip. We’ve only used it few times, but Matthew loves it {as you can see from the picture below}.
Our tentative route is below and stop “D” will be the 2019 Research Symposium & Family Conference.
If you couldn’t tell; we are very excited about the trip, but we know it wouldn’t be possible if not for all our amazing sponsors who have donated so many items that will help us make the trip as comfortable as possible for Matthew.
Please take a moment to check out our sponsors page and stay tuned because we will be posting blogs about each one of them as well as how they sponsored us.
Finally, please help us by sharing our blog and following us on our other social media sites.
The Cook Family