Our First Cruise – We are Loyal to Royal
We LIKE to be adventurous … ok, ok … pointing out the key word – like! We traveled to the Philippines in 2017 and it was the longest flight we have on the books for Matthew. While hubby and I were very much apprehensive, Matthew, 5 years old at that time enjoyed the whole experience. […]
2021 Awareness Drive – The Unforgettable Birthday
It is Mike’s 51st Birthday, he has never seen Niagara Falls so it was fitting to outline that we would be in the Niagara State Park to commemorate his special day. We went to the park very early so we could beat the tourist crowd. Angelman Syndrome kids always have a love affair with water. […]
2021 Awareness Drive – OK4WD
For every campground stop, our camper always get a double take from other campers. What makes the mini camper unique is because of how it embodies our awareness. For three years in a row, we have our own design that we have incorporated to make it more personalized to a COOK’s AS Journey. Since this […]
2021 Awareness Drive – FEW DAYS on the ROAD …. to Richmond!!
Charlotte NC to Richmond VA, isn’t a long drive but if you factor in the traffic, the 5 hour drive lasted us 7 hours. How do people put up with the traffic? My husband and I thought that our lives are very hectic, and experiencing the traffic in the east coast, I don’t think I […]
2021 Awareness Drive (A Few Days In)
We have been travelling on the stretched of I-40 too many times, especially going East Bound, and you would think we would be looking for alternative route to ease some of the boredom on the interstate stretch. There is not a lot of sightseeing to do for kids unless of course you like anything country. […]
PRELUDE to 2021 Awareness Drive
Two weeks before our planned itinerary, my hubby started feeling ill. If this would have been different timeframe, we would shrugged it off and I would have told him “don’t be a cry baby”. However, we are meeting people along our route, and I hate to admit that this pandemic is making paranoid out of […]
Tiny Camper Wrap
We took Matt’s new mini-camper (teardrop-like) out a few times and decided that we would use it for our 2021 Awareness Drive, rather than taking our 19″ camper. The reasons for this is that when we pull the 19″ trailer we average 4-6mpg. That wouldn’t be too bad when your driving somewhere near your home […]
Matthews Wish Granted
As we are prepping up for our 2021 Angelman Syndrome Awareness, we want to shout out and thank Make A Wish (Oklahoma Chapter). Three years ago, we wished for a cruise and was granted for 2020 departure, then the pandemic happened. We were back to drawing board to request something different since cruise is still […]
Awareness 2020 Day 1
In route to SoCal, we were intentional of our stops along the I-40 stretch. There were quite a few kid-friendly excursions, however, we are very selective and mindful of our socialization. A must stop is the magnificent Grand Canyon. I have seen its glorious beauty a few years back but Mike has only set his […]
That’s A Wrap!
We can’t thank Lettering Express in Oklahoma City enough for their donation of a wrap for the back of our travel trailer. I know that it looks good online but in person it looks even better. 🙂 They installed it on June 21st and we picked it up and decided we would record Matt’s expression […]